With one touch last summer, what was just another day in the life of a Trojan graduate student suddenly became something much more.
“It was the third day of school and I was in class, touching my neck,” recalled Caryn Roach, a student in the entry-level professional program of the USC Division of Occupational Science and Occupational Therapy. “And I felt a big lump.”
When you’re a thirtysomething student enrolled in the nation’s top-ranked occupational therapy graduate educational program with a bright career ahead of you in a workforce market booming with employer demand, “lump” is the last word you expect to hear, let alone feel.
But as a budding occupational therapist (OT), Roach is naturally attuned to the ways health conditions can variously impact everyday activities and lifestyle. Rather than shrug off those first suspicions, as she might have when she was working in the real estate industry prior to coming to USC, red flags were raised immediately.
After class was dismissed, Roach walked to Eric Cohen Student Health Services to begin a diagnostic workup. After being referred to radiology for further testing, less than two weeks after feeling that fateful lump, Roach received her diagnosis: Hodgkin’s lymphoma.
“It was a shock because I’m not someone who gets sick,” she said. “I’m one of those people that are like, ‘I have such a good immune system that I don’t get sick.’ So no one, no one, expected that I would get cancer.”
At the Health Sciences Campus, occupational therapy classes convene in the Center for Health Professions, a building across the street from the USC Norris Cancer Hospital, one of a few Southern California facilities exclusively dedicated to cancer research and care. It was there in early September where she began treatments under the watchful eyes of Keck School of Medicine of USC faculty oncologists.
Hodgkin’s lymphoma is a type of blood cancer originating from white blood cells known as lymphocytes. While its cause is unknown, Hodgkin’s lymphoma is thankfully considered one of the most curable forms of cancer when detected early enough in its progression. Patients can be effectively treated with radiation therapy or chemotherapy, and because five-year survival rates exceed 90 percent, many young patients often live 40 or more years after treatment. Regardless of the relatively optimistic prognosis, nobody expects or wants cancer.
Yet with cheery optimism characteristic of many occupational therapists, Roach focused on the positive aspects of her circumstances.
“It’s not perfect,” she said, “but if I were still working in real estate and this happened, it could’ve been really, really bad. I’m here at USC, and I automatically get a good doctor. My mom’s like, ‘You’re getting your tuition’s worth.’ It’s been the best experience for what it could have been.”
Roach also exemplified the spirit of occupational therapy in the way she chose to continue living life to its fullest rather than retreating into her diagnosis.
As health care providers, occupational therapists provide clinical interventions designed to help their patients perform meaningful activities, no matter the obstacles posed by extenuating health conditions or life circumstances. For Roach, that outlook meant she would not be taking a leave of absence. Throughout the fall 2012 semester, she continued to keep pace with course lectures and assignments while also undergoing treatment.
“It wasn’t really ever a question of ‘Am I going to keep going to school?’ Yeah, I’m going to try because what else am I going to do?” she said. “That’s the foundation of occupational therapy — meaningful activities.
“Sometimes people think living is the most important thing. I know this, but I still am the same person I was before,” she said, laughing with her trademark megawatt smile. “I want to get A’s.”
Roach also has a second family — the Trojan Family — that will soon be supporting her.
“I’m not lucky that I got cancer, but I think I’m very lucky with the timing of getting cancer,” she said. “I’m at USC. I’m in occupational therapy. I’m surrounded by very caring and supportive people, my classmates and all of the faculty.”
In late November, those caring classmates rallied around their friend and colleague. Because hair loss is perhaps the most obvious side effect of cancer treatments, Roach decided to just go ahead with shaving her hair and began wearing a decorative scarf on her head.
In a touching display of solidarity, the entire second-year master’s class organized “Scarf and Hat Day” in response. More than 100 students arrived at school wearing some form of headdress, including beanies and ball caps. Together they posed for a group picture at the Harry and Celesta Pappas Quad in the heart of the Health Sciences Campus. Front and center was Roach, flexing her biceps and smiling widely.
“The Scarf and Hat Day that we had says a lot about our program and the people who are in it,” Roach said. “I thought there would be like 20 people, maybe. But it was everyone. People that I’ve never even spoken to. It was everyone.”
According to Roach, that emotional support was not only a gesture to her but a broader reflection of the empathy at the heart of USC occupational therapists, present and future.
“It makes me feel good, and I know that it makes other people feel proud to be a part of this group. Knowing that we’re going to go out, and we’re going to go be OTs, and we’re going to help people make their lives better,” she said. “It just feels good to be a part of that. I don’t know where else you can find a group of that many people that are so caring and so supportive in one place.”
In January, with treatment well under way, Roach successfully walked the Tinker Bell Half Marathon at Disneyland in Anaheim, Calif. With the help of Team in Training, a fundraising program of the Leukemia & Lymphoma Society, she used her walk as an opportunity to raise money for improving treatments of leukemia, lymphoma, Hodgkin’s disease and myeloma. Not only did she finish the race — her 10th half-marathon and first with cancer — she was also the top fundraiser in the entire nation, raising more than $11,000.
In March, Roach finished her last scheduled treatment. With more surveillance testing ahead of her, she is technically not yet in remission. But she is already looking forward to ways of leveraging her experience to benefit others in need.
“I’ve realized that I can do more if I work in oncology,” she said. “Going through this myself, going to a few support groups and hearing how other people are dealing with things, you can see that they need occupational therapy.
“A lot of people aren’t able to work anymore — they get diagnosed and they get treatment, and they can’t work; they have to quit their jobs or go on disability because they’ll be in chemo for three days straight,” she continued. “They don’t have the energy, they can’t do the things they used to do and their whole schedule shifts. Everything changes.”
Roach also recently decided to pursue her Doctorate of Occupational Therapy, accepting a clinical residency position at the Keck Medical Center of USC with the hopes of working one-on-one with people with cancer.
“I don’t think a lot of people are getting occupational therapy, who have cancer. This is somewhere I can give my input, and it means something. I am here. I’m living it right now,” she said. “I feel like a cliché, but I think that’s where I need to be because that’s where I can really help people.”